Welcome

Thanks for being concerned about Ilan. We will try to post updates, pictures, and other information often. If you have any specific questions, please post them in the comments or e-mail us.

- David, Jarone, and Michal

Tuesday, June 24, 2008

Note from a friend (and physical therapist)

Hi! My name is Roslyn Liberman. I am a physical therapist by profession, but primarily I am an old friend of the family. I was there when Brian and Estelle first met each other at a party. I have been involved with Ilan since he returned to UCLA hospital from Santa Barbara's Cottage Hospital. Ilan has struggled with numerous medical setbacks-infections and two failed neurosurgeries. Now he is more comfortable and medically stable and will be coming home in a month. But his present needs are great. He does not have speech yet or voluntary control of movement. He does communicate by blinking his beautiful eyes.

Yesterday, I was asked by Estelle and Brian to stop by their home to assess the environment for Ilan's return. There is so much that needs to be done, and quickly. The master bathroom needs to be gutted and the whole room needs to become a shower with a sloped floor for drainage. It is very important for his skin to have washing facilities. The sink and toilet must be moved and made accessible. Ideally doorways need to opened to allow wheelchair entry to bedroom, bathroom and patio. The master bedroom needs a complete rehab to accomodate Ilan. Without question ramps have to be installed.

Ilan has a tracheotomy and the ambient air must be very clean- so he would benefit from a hepa filter air purifier system, not taxing to his immune system.There are many pieces of equipment needed for his care, most of which are very expensive. These big ticket items include a van with special lift and a tilt-table for home use.

Please put on your community thinking caps. What is needed is a contractor to donate some time and/or extremely generous philanthropists to make things happen. If anyone can help, that would be wonderful or if you think you know someone you could ask for help, that would be wonderful. If you have any suggestions, please come forward and contact the family or me at work (323) 634-0221. Donations can be made to Rabbi Wolpe's Discretionary Fund for Ilan Ashkenazi.

If you know him, you know Ilan is very brave and strong. He wants his old life back and he will fight for it. It takes a village to help him.

Bless you all and let us only hear good news about Ilan's progress from now on.

Sincerely,

Roslyn Liberman

Friday, June 20, 2008

Home

Estelle and I wish to thank the entire community for their prayers, wishes and support for Ilan.
We also want to thank our tireless kids David, Jarone and Michal: without their help and understanding we would never have been able to focus and shower so much of our energies on Ilan.
Last but not least we wish to thank Sinai Akiba/Sinai Temple as well as Milken High School/Stephen Wise Temple for their unwavering commitment to teaching our kids to be the best mensches they can be.
We know they have blossomed under their care and guidance.
It is hard to believe that it has been almost 9 months since the accident. Since Ilan's last surgery exactly 4 weeks ago, Ilan is much more relaxed and able to focus on his recovery.
Ilan is a strong and determined boy and he has valiantly fought and won his battle thru recovery. He has now expressed a longing to come home. In about a month, our family will embark on a new journey that we hope will coax Ilan along in his tough battle to win the war to recover speech and mobility. We hope and pray that coming home will give him the strong desire to fight harder and find the psychological edge and confidence needed to overcome the barriers along the way.
He will need your help when he gets home - our house will always be open. Please call and/or stop by to see him and cheer him on!!

Shabbat Shalom and once again thank you all from the bottom of our hearts.

-Brian and Estelle

Coming Home

Ilan is scheduled to come home on or about July 23, 2008. Although he has made progress, there is an enormous road ahead. All of you in our community have been so gracious in your offers to assist our wonderful Ilan, we would like to call on you now.

- We will need to update the master bedroom
- Make the bathroom wheel chair accessible
- Ramps in the doorways
- Rehabilitation equipment-standing frame, stationary bike, and other physical and medical equipment

Thank you so much for your continued prayers, thoughtfulness and kindness for our wonderful Ilan.

- Jarone

Sunday, June 15, 2008

Swallowing & Squeezing

Tonight (Sunday June 15) my brothers, and my mom came down to HealthBridge for Fathers Day. When we first walked in the door Ilan smiled at us with complete and total joy! We settled in to the room and one by one we said hi to Ilan, telling him about the week we have had. I was the last one to say hi to Ilan but i was happy! The laker game was on and Jarone and David were busy watching it. So i held Ilan's hand so he would not be lonely.

Right away Ilan didn't look like he was bored anymore. He squeezed my hand so tight, that i thought that something was wrong. Actually he was looking at the T.V watching the lakers loose at one point! I was so relieved accept he couldn't stop squeezing my hand until the lakers started winning again!

Around the third quarter of the game, my family started eating. As usual we let Ilan smell the food that we eat as he can not swallow yet. We let him smell one of the soups that we got. It had the most seasonings and the most spices than all the other foods. So after he smelt it he started to feel a discomfort almost about to start coughing. And he did. Usually the cough keeps on going until he finishes clearing his throat unless he swallows. So my mom told Ilan, "Swallow Lani! Swallow!" Ilan kept opening and closing his mouth as he was swallowing. It was such a big accomplishment as he is not able to swallow food yet!

-Michal
If you have any questions or would like to help out,
Please feel free to email me at michal.adriana@gmail.com

Saturday, June 14, 2008

soccer and basketball

Yesterday my dad went down to Healthbridge to relieve my mom for the weekend. When arriving there my dad took Ilan for a walk around the facility to get some fresh air. Halfway around the building my dad found a soccer ball and asked Ilan if he wanted to play soccer. Right away he blinked twice acknowledging that he was eager to pass the ball around.

My dad took one of Ilan’s legs and placed it on the ground. He then put the soccer ball right next to his foot and helped Ilan push the ball. After a couple of passes, my dad switched legs and Ilan enjoyed it a lot. Then my dad saw a basketball lying outside and asked Ilan if he wanted to play some basketball.

After blinking twice again to say that he wanted to play some basketball, my dad went to pick up the ball. One of the nurses aided my dad in picking Ilan’s hands up and holding the ball. At first, Ilan was in a little discomfort because this was something new and weird to him. My dad saw this on his face, and readjusted how he was holding the ball so he would be comfortable. Ilan (with my dad’s help) starting throwing the basketball but was getting a little tired.

My dad took Ilan inside and went on skype to video chat with me to tell about his day.

- Jarone

Wednesday, June 11, 2008

Swimming

On Monday, Michal and I visited Ilan in the afternoon. Although he was a bit out of it earlier on he became more attentive as we paid more attention to him. Michal noticed that he looked slouched in his chair, so we decided to help him stretch. We lifted his arms up and down, and also out and in. It reminded us of a swimming motion, and we started describing the motion as though he were swimming the butterfly.

At each part of the stroke, we explained where he was in the water and how hard he had to push. As we started getting going, I think Ilan really began to focus. He seemed to be helping us my relaxing some of the stiffness in his arms, and his eyes were wide open with a fixed glare. We continued for a while, and then did some flutter and breaststroke "kicking," which I'm not sure if he liked as much. I think he most enjoyed us helping him visualize what he was doing.

- David

Tuesday, June 10, 2008

Ilan's condition

Many people have asked about Ilan's condition, so we figured it would be best to get some information out there. Ilan is currently at a rehab facility in the City of Orange. Our mom spends the week with him, sleeping in the room, and our dad switches with her for the weekend. The time we spend all together is for Shabbat on Friday evening. Ilan has a shunt in his brain to help him drain brain fluid, and recently had surgery to reconstruct a part of his skull. He is looking much better after the surgery. He also has a tracheotomy to help his breathing.

For the most part, Ilan does not move much on his own. However, yesterday he stuck his tongue out for our dad, which was very exciting! There are times when he is alert, and there are times when he is not. When he is focused, we have to try to read his blinks - his eyes and facial expressions do most of the communicating. Hopefully that gives some information, but please be in touch with any specific questions. We hope to have more good news to share soon!

If you need information about the accident itself, you can Google "Ilan Ashkenazi Santa Barbara." You can also go to http://www.dailysoundonline.com/, click on the archives and find the October 1st, 2007 copy of the paper. Feel free to ask us questions to fill in the gaps.